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The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

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Nội dung chi tiết: The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014randels UniversityDepartment of Biological Sciences, Graduate Program in Genetic Counseling Judith Tsipis, PhD, AdvisorIn Partial Fulfillment of the R

equirements for the DegreeMaster of ScienceInGenetic CounselingByMarcina Beaston-Casey41760ACKNOWLEDGEMENTSI would first like lo thank my thesis commi The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

ttee: Judith Tsipis, PhD, Devanshi Patel, MS, C.GC, and Elizabeth Lambert, who each contributed their own expertise to this project. They gently pushe

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

d me to think beyond my own perspective in ways that led to the final product of which 1 am very proud. 1 would also like to thank red and Liz Cross,

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014 for her input early in the process of developing my survey, and the 84 individuals who chose to take the time to share their personal thoughts and ex

periences.Thank you to the Brandeis Genetic Counseling program and faculty, including Judith Tsipis, Gretchen Schneider, Beth Rosen-Sheidley, and Miss The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

y Goldberg. Your support and encouragement went far beyond my expectations for this or any program. And to my amazing classmates, who steadfastly acce

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

pted me as I am; collectively you are going to help an astounding number of people. I am honored to have completed this program with you.Finally, than

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014ex, and Evan, lor their help, encouragement, sacrifice, and sometimes tolerance in the face of what amounted to the greatest challenge of my life.HiAB

STRACTThe Psychosocial Implications of Hereditary Diffuse Gastric CancerA thesis presented to the Department of Biology, Program in Genetic Counseling The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

Graduate School of Arts and Sciences Brandeis University Waltham, MassachusettsBy Marcina Beaston-CaseyThe unique journey families face with hereditar

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

y cancers warrants investigation as it impacts quality of life and survival in ways that are different from experiences in families with sporadic canc

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014ophylactic total gastrectomy (TG) necessary to reduce risk. Few studies have looked at the psychosocial ramifications of the Identification of a hered

itary predisposition for gastric cancer In a family and the necessary prophylactic surgery that follows.The purpose of this qualitative study was to e The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

xplore the psychosocial journey facing families with members found to cany the mutation known to cause a predisposition for HDGC. Eighty-four individu

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

als completed a survey, offering advice for those stepping into the experience and for the professionals guiding them. We used qualitative content ana

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014viduals and families facing the experience of HDGC: (1) Physicians need to be better educated about the physical and emotional aspects of dealing with

HDGC. (2) Dieticians need information about the unique dietary requirements associated with TG. (3) Genetic counselors should be prepared to educate The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

and provide resources for entire families, including those individuals who are not at risk.This study shows those dealing with HDGC are in need of hel

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

p from the medical community, Including genetic counselors. This highly motivated group is eager to educate and share their experiences with others. T

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014y diffuse gastric cancer, psychosocial implications, total gastrectomyvCONTENTSAcknowledgements.......................................................

.iiiAbstract.................................................................ivList of figures........................................................ The-Psychosocial-Implications-of-Hereditary-Diffuse-Gastric-Cancer-HDGC-June-2014

.vli

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

The Psychosocial Implications of Hereditary Diffuse Gastric CancerMaster's thesisPresented toThe Faculty of the Graduate School of Arts and SciencesBr

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