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Ebook Thefacts - Pulmonary arterial hypertension: Part 2

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Nội dung chi tiết: Ebook Thefacts - Pulmonary arterial hypertension: Part 2

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2st team anything you want to know about your condition.Preparing for clinic appointments and travelling to and from clinic can be stressful and tiring

.Write down any questions you may have.Bring your medications with you.Do not hesitate to phone after a clinic appointment if there is something you a Ebook Thefacts - Pulmonary arterial hypertension: Part 2

re not sure about or something that has confused you.Specialist PAH clinics and outreach clinicsEach of the main PAH centres in the UK runs clinics in

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

its own way, and there may be differences in the way that they are run. You may also be seen in an outreach clinic. This is in a hospital which is no

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2om a PAH centre also attends. The aim of outreach clinics is to make life easier for the patient. There is a shorter distance to travel and ‘taking th

e specialist PAH centre to the patient’ makes life quite a lot easier. Most patients prefer to see the PAH specialist with their local medical and nur Ebook Thefacts - Pulmonary arterial hypertension: Part 2

sing team at a local hospital.Bring someone with youIt is sensible and practical to bring someone with you, at least for your first clinic appointment

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

. This is helpful whatever your state of health. Your husband or wife, family member, or a close friend will take you to the clinic, help you carry an

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2wever, may not allow you to travel with someone because there may not be enough room in the car and this is something you should findChapter 8 ■ Clini

c appointmentsPerhaps most importantly, whoever accompanies you will remind you about what you were told in clinic. Most patients find it difficult to Ebook Thefacts - Pulmonary arterial hypertension: Part 2

take in and remember everything they have been told by the doctors and nurses. If English is not your first language or you have hearing difficulties

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

, it is really important to bring an interpreter or someone else with you to explain what is going on.The main purpose of the clinic appointmentThe ma

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2 explain what tests they need and what is involved, and what changes need to be made to their medications. Blood tests, X-rays, scans, ECGs, breathing

tests, and other tests may be done on the same day.If you are worried about symptoms which you think may be due to your condition or your medications Ebook Thefacts - Pulmonary arterial hypertension: Part 2

, there is no better place to discuss it than face to face with your clinical team. Telephone calls and the helpline are usually very reassuring for p

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

atients, but nothing beats a face-to-face consultation. The clinician can examine you, ask questions arising from your symptoms or the examination, an

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2e admitted to hospital for tests or changes to their treatments. In most centres in the UK however, patients attend the PAH outpatient clinic and go h

ome the same day.Information from the clinic appointment and computer screenWe are all living in the computer world and this has generally greatly imp Ebook Thefacts - Pulmonary arterial hypertension: Part 2

roved clinical care for patients. Assuming that the results of tests have been entered on the hospital database, all the results of your blood tests,

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

scans, and other tests will be available at the click of a mouse. Clinical details of your history and examination, walking tests, heart ultrasound, c

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2omputers in clinical care is that clinicians are forced to look at the screen rather than at the patient during the consultation. This is quite an imp

ortant problem, and in recent years patients visiting their GP health centre or polyclinic, or a hospital clinic, have told US that these important co Ebook Thefacts - Pulmonary arterial hypertension: Part 2

nsultations are more like an experience at an airport check-in desk than a very personal communication with their doctor. Unfortunately, this is ‘prog

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

ress’ and it is the responsibility of doctors to make sure that they ‘connect’ with the patient and not only with the computer!Pulmonary arterial hype

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2 and fog communication between the patient and the doctor. This can be solved if the doctor invites the patient to sit to the side of the desk rather

than directly behind it. There should be room for at least one of your family or a friend to sit down with you. Patients in wheelchairs can also posit Ebook Thefacts - Pulmonary arterial hypertension: Part 2

ion themselves conveniently and comfortably.Your test results belong to youAll the results from your tests belong to you, and you can always ask for c

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

opies of tests and copies of letters we send to your GP and other specialists involved in your care. In most hospitals, patients are copied in to the

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2intment. Remember, the appointment is not an examination or test. It is an important and hopefully, pleasant educational and reassuring visit with you

r PAH team. They have only one interest—your welfare. They want to do everything they can to help you.Before you come to clinic, make sure that you do Ebook Thefacts - Pulmonary arterial hypertension: Part 2

the following:Write down any questions and ask them when you come. Bring a notebook and pen to make notes if you wish.♦Bring all your medications and

Ebook Thefacts - Pulmonary arterial hypertension: Part 2

tablets with you.♦If you have a rather complex health history, write down the conditions and dates when they occurred, and who treated them and at wh

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

Ebook Thefacts - Pulmonary arterial hypertension: Part 2ure that you eat and drink before you start on your journey and bring a snack or some sandwiches and something to drink.♦Bring a book to read in case

you have to wait at some stage on the journey or when you arrive in clinic. Most hospitals are very sensitive to patients’ waiting times, but there ar Ebook Thefacts - Pulmonary arterial hypertension: Part 2

e sometimes unavoidable delays due to all sorts of events out of the control of the PAH team.

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

8Your clinic appointmentsKey pointsYour PAH clinic appointments are important for you and your family.The appointments allow you to ask your specialis

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